The dystonia walk will start at 10 a.m. on Sunday at Commons Waterfront Park in Pitt Meadows. (Contributed)

Walk for dystonia in Pitt Meadows on Sunday

Boy Scout organized event in memory of his aunt

A Pitt Meadows boy who lost his aunt has organized a walk to raise awareness about dystonia on Sunday.

It will leave from Commons Waterfront Park in Pitt Meadows at 10 a.m.

“There is no cure for this, so the more awareness there is, and the more people donate, the better chance of finding a cure,” said Debra Douglas.

Her 11-year-old son Corbin wanted to organize the walk in memory of his aunt, Debra’s twin sister, Donna L’Arrivee. She passed away in 2016 at 45 years of age, and suffered from severe dystonia, said Douglas.

Dystonia is a movement disorder. It is characterized by painful and prolonged muscle contractions, and results in abnormal movements and postures. Patients might have a dragging leg, uncontrolled blinking or difficulty with speech. They feel frequent pain an exhaustion.

Corbin is a Scout, and was considering how he could do a community service when he proposed the memorial walk to his mother.

“This walk is what he chose to do,” said Debra. “He wanted to raise awareness about dystonia and to keep his aunt’s legacy alive.”

They have been working on the project together. Corbin is aiming for nothing less than the Chief Scout Award, which is the highest honour in scouting.

She told him he will have to make a speech for those attending.

“He said ‘I’ll probably cry,’ and I said ‘That’s okay.’”

Corbin was very close with his aunt, she said.

READ ALSO: Organizer of B.C. walk to honour stillborn children says event has sold out

Debra has been diagnosed with a genetic connective tissue disorder that causes painful joints, and has numerous co-morbid diagnoses. She worries about her children inheriting genetic disorders.

They are leading the walk, and expect at least 25 people to talk part. They would like to make it an annual event.

They will not be taking donations, which may instead be made directly to the Dystonia Medical Research Foundation of Canada.


 

@NeilCorbett18
ncorbett@mapleridgenews.com

Like us on Facebook and follow us on Twitter

Just Posted

Halloween Howl to kick off festivities in Maple Ridge

Norman Foote concert with Yennadon elementary choir

Angel highlights the benefits of volunteerism at Ridge Meadows Hospital

Yvonne and John McDonald are nine-year volunteers at the hospital

Celebrate the salmon’s return in Maple Ridge

Return of the Salmon put on by KEEPS

UNTRENDING: Preparing kids for a digital life

Entrepreneur, speaker, and columnist Vicki McLeod offers some insight into children and cyberspace

Supercars in Pitt Meadows for Aidan’s Cup

Event raises $40,000 for Children’s Wish Foundation

LETTER: Middle class better off with Trudeau’s child benefit boost

It’s a transfer, not a tax cut, but it helps families get ahead

VIDEO: Depth and scoring lacking for Vancouver Giants this season: Coach

G-Men defeated on home ice Sunday by Victoria – next up Everett on Friday

Report suggests new BC Ferries terminal near YVR

Metro Vancouver currently has two ferry terminals at northern and southern reaches

B.C. scouting group’s tent destroyed by black bear on Thanksgiving

The Richmond-based Sea Dragon Sea Scouts were camping at Mount Seymour Provincial Park

Greta Thunberg meets with First Nations chief in Fort McMurray

Thunberg has turned her protest against climate change into a global movement

Canucks hang on for 3-2 win over Rangers in New York

Vancouver scores three times in first period

Most Read